CougarsMist
Posts:
2
Joined:
Jul 20, 2007
Status:
Offline
Posted Tue Dec 18, 2007 4:35 am...
Merry Meet:
I hope I'm posting this in the correct spot. I went back and forth as to post here or under the family section. If this is not the correct area, please accept my apologies.
I am trying to find someone who has some experience, or knows someone who has experience, in a very unique situation. This is a bizarre story, although every part of it is extremely true. I have hesitated and thought a long time about putting this out for review and advice, as it sounds so unrealistic. My hope is that those who frequent the very few and exceptional groups I’m seeking assistance from are open enough to believe me.
My youngest was born with multiple and complex neurological anomalies, including the complete absence of her corpus callosum. She had a tumor removal located in the right parietal lobe of her brain at eight months old, which saved her life but left her non-verbal. She communicates via sign language and augmentative communication devices. Through all the challenges, she has been gifted with exceptionalities and has tested out at several grade levels of her actual 5th grade placement. The challenge we are facing, however, is one in which I have reached a dead-end at trying to work with. She has appeared to have been blessed (or cursed, depending on how it’s viewed) with the skill of “reading minds”, particularly if they are in direct physical contact with her. Now, before this whole statement gets out of hand, let me explain. We have noticed this in the realm of her school work. When tired…or simply not in the mood to work—which is often—she will write out, word for word, what the person helping her hold her pencil is thinking. I know that this has been going on for at least a solid year…I’m not sure if it’s been longer of not. Her inclusion facilitator—thank the goddess—is exceptionally open minded and has caught her doing it multiple times and is completely on board with this phenomenon. Her personal assistant has also caught her doing it. When she doesn’t want to do her own work, she pulls the answers….or whatever the person she is with…is thinking. This has resulted in writing assignments that consist of personal grocery shopping lists, the words to Christmas carols, as well as a planning list for a birthday party of someone she didn’t even know. As funny as it may sound, it’s causing an enormous amount of problems. Obviously, the ramifications are numerous and it’s the ones that lie on a deeper, philosophical level that have me so concerned. Questions abound such as, if she is “reading” minds, can she read those of everyone around her or do they have to be in physical contact? How much has she “heard” that she can’t fully understand? What emotional damage is being done? We have not come up with an unobtrusive way to try and “test” her to see if she can accomplish this with someone not in physical contact with her…and quite frankly the possibility scares the !@#$% out of me. Over the past 2 and a half years, she has been diagnosed with moderate to severe depression and anxiety disorder. She also has exhibited a much higher resistance to utilizing her equipment—which enables her to keep up with her classmates and friends—a problem that we never had in the past. I could go on and on, as her case history with this “gift” alone is extensive; however, what I am hoping is that someone out there knows of an adult with the same gift? Ideally, I would love to find a social worker or psychiatrist in the Chicagoland area who has this same gift who I can hire to start working with her. She currently has a wonderful social worker, psychiatrist and counselor, but none of them are open-minded enough to even consider this situation as feasible…and I’ve been exceptionally cautious in pushing the matter for fear that my daughter will be turned into a human guinea pig. At this point, if there is someone out there who has this gift and who can offer guidance to myself and her inclusion facilitator with how to help my baby understand this gift and how to deal with it. What’s okay to do and what’s not…and why. She will be starting junior high next year and the implications of having to deal with all of the discrimination, prejudice and typical “pre teen junk” that I am anticipating I fear will be more than she can humanly handle without someone else who is in the similar situation and has learned how to cope and deal with their gift as an adult to work with. If anyone out there knows of such a person, any recommendation will be graciously accepted.
Thank you and Blessed Be.
CougarsMist
I hope I'm posting this in the correct spot. I went back and forth as to post here or under the family section. If this is not the correct area, please accept my apologies.
I am trying to find someone who has some experience, or knows someone who has experience, in a very unique situation. This is a bizarre story, although every part of it is extremely true. I have hesitated and thought a long time about putting this out for review and advice, as it sounds so unrealistic. My hope is that those who frequent the very few and exceptional groups I’m seeking assistance from are open enough to believe me.
My youngest was born with multiple and complex neurological anomalies, including the complete absence of her corpus callosum. She had a tumor removal located in the right parietal lobe of her brain at eight months old, which saved her life but left her non-verbal. She communicates via sign language and augmentative communication devices. Through all the challenges, she has been gifted with exceptionalities and has tested out at several grade levels of her actual 5th grade placement. The challenge we are facing, however, is one in which I have reached a dead-end at trying to work with. She has appeared to have been blessed (or cursed, depending on how it’s viewed) with the skill of “reading minds”, particularly if they are in direct physical contact with her. Now, before this whole statement gets out of hand, let me explain. We have noticed this in the realm of her school work. When tired…or simply not in the mood to work—which is often—she will write out, word for word, what the person helping her hold her pencil is thinking. I know that this has been going on for at least a solid year…I’m not sure if it’s been longer of not. Her inclusion facilitator—thank the goddess—is exceptionally open minded and has caught her doing it multiple times and is completely on board with this phenomenon. Her personal assistant has also caught her doing it. When she doesn’t want to do her own work, she pulls the answers….or whatever the person she is with…is thinking. This has resulted in writing assignments that consist of personal grocery shopping lists, the words to Christmas carols, as well as a planning list for a birthday party of someone she didn’t even know. As funny as it may sound, it’s causing an enormous amount of problems. Obviously, the ramifications are numerous and it’s the ones that lie on a deeper, philosophical level that have me so concerned. Questions abound such as, if she is “reading” minds, can she read those of everyone around her or do they have to be in physical contact? How much has she “heard” that she can’t fully understand? What emotional damage is being done? We have not come up with an unobtrusive way to try and “test” her to see if she can accomplish this with someone not in physical contact with her…and quite frankly the possibility scares the !@#$% out of me. Over the past 2 and a half years, she has been diagnosed with moderate to severe depression and anxiety disorder. She also has exhibited a much higher resistance to utilizing her equipment—which enables her to keep up with her classmates and friends—a problem that we never had in the past. I could go on and on, as her case history with this “gift” alone is extensive; however, what I am hoping is that someone out there knows of an adult with the same gift? Ideally, I would love to find a social worker or psychiatrist in the Chicagoland area who has this same gift who I can hire to start working with her. She currently has a wonderful social worker, psychiatrist and counselor, but none of them are open-minded enough to even consider this situation as feasible…and I’ve been exceptionally cautious in pushing the matter for fear that my daughter will be turned into a human guinea pig. At this point, if there is someone out there who has this gift and who can offer guidance to myself and her inclusion facilitator with how to help my baby understand this gift and how to deal with it. What’s okay to do and what’s not…and why. She will be starting junior high next year and the implications of having to deal with all of the discrimination, prejudice and typical “pre teen junk” that I am anticipating I fear will be more than she can humanly handle without someone else who is in the similar situation and has learned how to cope and deal with their gift as an adult to work with. If anyone out there knows of such a person, any recommendation will be graciously accepted.
Thank you and Blessed Be.
CougarsMist









